Wednesday, September 14, 2016

It has been 2 years since Parker fell 2 feet from a picnic bench and hit dirt. 2 years since he had a massive bleed under the dura in his brain that altered our lives forever.  Let's just say I am grateful to be on this end of 2 years. He has come so far.  I am not sure if I have explained this here, but Parker lost the entire left hemisphere of his brain due to the bleed and subsequent pressure. He had an additional stoke on the right side as well as a stroke on both sides of the front and damage down the middle. He lost almost 3/4 of his brain. He should NOT have survived.  And he did.  Thanks to the prayers of so many of you, the incredible doctors and nurses at UCLA, his drive and spirit and so, so many miracles.  I am so grateful to my Heavenly Father that we got to keep him.  He started completely over 2 years ago as less than a newborn- with no neck control and no reflexes to help him along the way. He has come so far.  I love two quotes that my sister Brittany has used to describe him. "How many 2 years olds (now 3) do you know with a work ethic?" and "tricky adaptable child." I absolutely adore my tricky adaptable child. He amazes me. We got to keep him.  And we are so so grateful.

Wednesday, September 7, 2016

We just got this mat for Parker. We have been contemplating it for a while and saving up, but these past few weeks both OT and PT have been using it a lot so we decided to get it. We've already used it so much. It is great for crawling, scooting downhill, rolling with his weak side and so many other things. We have used it several times already. And my gymnast girls don't really mind it, either...
Parker's favorite song is "I am a child of God." He is getting so much better at matching pitch. His language center of the brain was annihilated, but he can sing. He responds so well to music and has since his injury. We started music therapy this week and I am really excited to see his progress.