Parker keeps throwing up and he has been crying and throwing
up for 3 days now. Poor baby. He has a pretty big build up of fluid in his
brain right now that might be causing the nausea. We are praying it will stop
growing and begin to absorb on its own and/or that the neurosurgeons will be
guided to the right course of action-whether to wait, evacuate or shunt it.
Saturday, October 4, 2014
I am so excited to watch General Conference with my kiddos
and mom this morning and weekend. I am really REALLY looking forward to a
weekend full of spiritual lifting and emotional strengthening through amazing
talks by our Prophet and Apostles. https://www.lds.org/general-conference/watch?lang=eng

God speaks today through living prophets at general
conference. As you study these messages, you will receive greater guidance in
your daily life.
Comment Update: Darrell is giving me a much needed break and he will be
watching from the hostible (as my kids call it). I miss him, though.
Friday, October 3, 2014
The pictures don't do justice. Silly baby. I
stepped away for 8 minutes to grab breakfast and bring it back to the room. I
came back and he was smiling covered in throw up. We think he does not
appreciate getting all of his meds in his feeding tube at the same time. This
makes throwing up 5 times in the last 24 hours, but they seem to correlate with
med times. At least it doesn't seem to bother him today. He just fell asleep in
my arms. Thankfully we both slept sooooooo much better last night.


Thursday, October 2, 2014
Poor baby. Ever since 2:00 yesterday has been rough. He has
either been crying or asleep in our arms or both. I sincerely hope it is just
from weaning off the meds. He threw up last night I am hoping just from crying
so hard. I sure love this little guy. I am really grateful he gave me two 3
hour blocks of sleep last night, plus a little more this morning. I didn't
think we were going to get any sleep.
Wednesday, October 1, 2014
We went on a walk this morning and came across a Legoland
activity at the hospital. My mom helped me build a pumpkin to decorate my room.
In PT I worked on learning how to roll over again from my side to my back. I
liked best to roll back and find Mommy. Sometimes I get really stiff and I have
to do lots of exercises to keep from getting too stiff. I got to eat some
banana baby food with my OT from a spoon today. I am slowly getting this
swallowing thing down better. I like to lick my lips to get the rest of the
delicious banana. I sure wish she'd let me have more. My favorite place to
sleep is my Mom's arms. I am like a newborn in many ways at the moment.

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