Saturday, October 4, 2014

Parker keeps throwing up and he has been crying and throwing up for 3 days now. Poor baby. He has a pretty big build up of fluid in his brain right now that might be causing the nausea. We are praying it will stop growing and begin to absorb on its own and/or that the neurosurgeons will be guided to the right course of action-whether to wait, evacuate or shunt it.
I am so excited to watch General Conference with my kiddos and mom this morning and weekend. I am really REALLY looking forward to a weekend full of spiritual lifting and emotional strengthening through amazing talks by our Prophet and Apostles. https://www.lds.org/general-conference/watch?lang=eng


God speaks today through living prophets at general conference. As you study these messages, you will receive greater guidance in your daily life.


Comment Update: Darrell is giving me a much needed break and he will be watching from the hostible (as my kids call it).  I miss him, though.

Friday, October 3, 2014

The pictures don't do justice.  Silly baby. I stepped away for 8 minutes to grab breakfast and bring it back to the room. I came back and he was smiling covered in throw up. We think he does not appreciate getting all of his meds in his feeding tube at the same time. This makes throwing up 5 times in the last 24 hours, but they seem to correlate with med times. At least it doesn't seem to bother him today. He just fell asleep in my arms. Thankfully we both slept sooooooo much better last night.

First smiles today!!!


Comment Update: I got a video, but I can't figure out how to post it from my phone.

Thursday, October 2, 2014

Does anyone know how I could set up a page for Parker? I have thought about a blog, or caring bridges, but I don't have time or thought power to figure out a new thing, so I thought about setting up a Facebook page.
Poor baby. Ever since 2:00 yesterday has been rough. He has either been crying or asleep in our arms or both. I sincerely hope it is just from weaning off the meds. He threw up last night I am hoping just from crying so hard. I sure love this little guy. I am really grateful he gave me two 3 hour blocks of sleep last night, plus a little more this morning. I didn't think we were going to get any sleep.

Wednesday, October 1, 2014

We went on a walk this morning and came across a Legoland activity at the hospital. My mom helped me build a pumpkin to decorate my room. In PT I worked on learning how to roll over again from my side to my back. I liked best to roll back and find Mommy. Sometimes I get really stiff and I have to do lots of exercises to keep from getting too stiff. I got to eat some banana baby food with my OT from a spoon today. I am slowly getting this swallowing thing down better. I like to lick my lips to get the rest of the delicious banana. I sure wish she'd let me have more. My favorite place to sleep is my Mom's arms. I am like a newborn in many ways at the moment.