We got some wonderful news tonight. Thank goodness for EEGs. It looks like not ALL of these are seizures and I am soooooooo relieved. There is so much to be grateful for, too. I am grateful for a neurologist that has been so concerned and looked into so much for us. He has spent so much time studying his MRIs, going back to the original injury, watching the episodes, reading the EEG, going through scenarios, trying different medications, listening to me and my husband, looking for other solutions and just trying to stop these seizures and cycles. And he has never once made me feel daft. Granted he was going to send us home multiple times before all the craziness yesterday afternoon, but I really appreciate his effort. I am really grateful he listened to me about putting him on the video EEG so much earlier. It made no sense to me they had not captured a seizure on EEG before this. I am grateful for the nurse that encouraged me to stay and get some answers because we would have ended up back here and that would have been so much harder.
I am grateful for all of the wonderful calls, sweet texts, comments and concern of so many. Parker is loved. We are loved. And that means so much. I am grateful for a wonderful conference talk I read today today. "Fear not, I am with Thee." It was exactly what I needed to hear and I was able share it with my kids. This stay has been really hard for them. They want their brother and parents home, too.
I am grateful Parker wants me get off my phone and play with him since he is no longer comatose from so many sedatives. So I am going to go play. Thank you so much for all of your prayers. I am sorry I keep asking, but pray that the neurologists will be guided and that we can find a way to control these seizures and get back to getting better!
Oh, sweet boy. You are such an amazing example to see so much good in a time of unknown. Your sister's post is sweet, too. We're praying furiously for you and Parker and the neurologists and for your dear family.
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