Thursday, November 6, 2014

Both the therapist and doctor said Parker won most improved this week. He is doing really great. He also has a long way to go, but he is well on the right track. The biggest things that need to improve right now is he needs to engage his right arm and start drinking more. Please pray for that. His left arm is getting pretty good now, so much so that he is not even trying as much with his right. He often will snatch whatever toy we put in his right out with his left and put i...t in his mouth so we resorted to pinning his left arm down today. The therapist kept laughing because as his right arm would try so hard, his left arm was just wiggling trying to get out and help, or take over, whichever way you want to put it.
His left arm has improved so much over the past month and I really don't want his right to fall too far behind. I feel like this is a crucial time for it to engage. Please pray his right arm and leg can really engage this week.
With his tummy, he still throws up occasionally, but not nearly as often. The last time was because since he is teething molars, he keeps trying to stick his hand back as far as he can to chew on it and gags himself regularly. The nice thing is that it has only caused him to throw up once. Before even if he started coughing his cookies were coming up.
His appetite is improving, but he is still only getting about 60-80% of his caloric needs, which is fine for short term. The problem is he is not drinking hardly anything. I have bought multiple sippy cups, we have tried straws, all different kinds of drinks... Right now he gets IV fluids overnight, but if he does not start drinking he will need to get a g tube before he goes home and we would love to avoid that. Please pray he can start drinking.
We appreciate you all so much. It means so much to have so many friends rooting for him and praying for him. We really feel so loved. He is a fighter and a trooper. He works so hard and complains so little and is just a delight. Thank you.
 
Both the therapist and doctor said Parker won most improved this week. :) He is doing really great. He also has a long way to go, but he is well on the right track. The biggest things that need to improve right now is he needs to engage his right arm and start drinking more. Please pray for that. His left arm is getting pretty good now, so much so that he is not even trying as much with his right. He often will snatch whatever toy we put in his right out with his left and put it in his mouth so we resorted to pinning his left arm down today. The therapist kept laughing because as his right arm would try so hard, his left arm was just wiggling trying to get out and help, or take over, whichever way you want to put it.  

His left arm has improved so much over the past month and I really don't want his right to fall too far behind. I feel like this is a crucial time for it to engage. Please pray his right arm and leg can really engage this week.

With his tummy, he still throws up occasionally, but not nearly as often. The last time was because since he is teething molars, he keeps trying to stick his hand back as far as he can to chew on it and gags himself regularly. The nice thing is that it has only caused him to throw up once. Before even if he started coughing his cookies were coming up.

His appetite is improving, but he is still only getting about 60-80% of his caloric needs, which is fine for short term. The problem is he is not drinking hardly anything. I have bought multiple sippy cups, we have tried straws, all different kinds of drinks... Right now he gets IV fluids overnight, but if he does not start drinking he will need to get a g tube before he goes home and we would love to avoid that. Please pray he can start drinking.

We appreciate you all so much. It means so much to have so many friends rooting for him and praying for him. We really feel so loved. He is a fighter and a trooper. He works so hard and complains so little and is just a delight. Thank you.

1 comment:

  1. Robyn Thomas Swenson, Nicole Dial Anderson, Jennifer Swenson Butikofer, Renee Swenson Winkel and 74 others like this.

    Ben Peisch Go Parker go!

    Tiffany A. Winkel Nutter Drinking & right side. Got it.

    Cindy Thompson So wonderful to hear about such amazing improvements. We continue to pray for you all. Thank you for sharing.

    Amy Ward He has always been such a happy kid. That awesome personality will pull him through all of this! Way to WOW us, Parker!

    Kelley Drury Birrell The part about his left arm wanting to take over is so funny to hear. Rachel did the same thing with her right arm. He can do this, Ash! We will continue to pray specifically for those things, and I'm excited to see all the progress he is making. Lots of love!!!!!!

    JoLynn Greenwood Thanks for all the updates. So glad he is improving! Our whole family is rooting for him!

    Jessica Dahlquist Think back a month... what a difference a few weeks makes. So happy for his progress!

    Meg Gibson Singley It has been amazing to see your journey so far. More prayers and love coming your way, my lovely friend.

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