Friday, July 1, 2016


I really want Parker to crawl. His initial PT said that he might never crawl and would probably walk first because of the weakness in his right arm, but the only way I could get him to put weight in his right arm is crawling. And the first step to using that right arm is weight bearing. And I want him to use that right arm, despite the fact that his brain didn't think it exists. I am super motivated. He..... not so much. Recently (this week), things are finally getting easier with crawling.

Imagine trying to teach someone to crawl when he cannot hold himself up, or even put any weight in either arm, let alone straighten his right arm at all, cannot move his right or left leg and when he tries, his whole body goes rigid into extension and his legs shoot back, collapsing onto his tummy and you have to start all over, break the tone, wrestle him back into position... over and over.  It is a full body exercise and he is not the one exhausted at the end.

He slowly, very slowly, has been getting better. He has less tone (which is rigidity due to miscommunication from his brain) in his body. He can actually bend his knees. He has recently been putting weight in his right arm. Just this week, he actually moved his left arm forward, and his left knee now moves forward instead of shooting back, and occasionally I can block his right leg from shooting back if I position my foot just right to block it, and I think once this week his right arm actually moved forward. This is MAJOR progress and I am super thrilled.

I am a bit excited. Can you tell?

Most of the progress and breakthroughs have been this week. I was showing his occupational therapist the progress he's made and she said she lays awake at night thinking about him and how to help him. She wished there was some way to strap him to her to remind his brain the right arm/left leg and left arm/right leg pattern. (Did you know the arms and legs move oppositely consecutively- try it. It's true)

Before I left, we tested it and he fits perfectly under me... And I happen have yards and yards of Velcro from buying it online in bulk (see????I knew it would come in handy). The result????


3 comments:

  1. That's brilliant Ashley! What an inspired and amazing momma you are!

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  2. That's brilliant Ashley! What an inspired and amazing momma you are!

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  3. You could advertise for Velcro with this post. I'm floored by how hard you work for Parker's sake every day. You're such a perfect mother. Really, you are! :)

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