Parker update- He is doing well. They have weaned him off of the super heavy pain meds and he is only on morphine. Eventually they will wean him off that as well. Yesterday morning he had no tone in is right arm and hand, but by last night he could grasp my hand. He suffered some strokes while the swelling was so bad that will affect movement in his arms and legs- so that grasp in his right hand is a big deal. His left arm has an excellent grasp and he even lifted his left arm on his own today! He is still fairly sedated, but his eyes open and he looks around whenever I do the PT on his legs to stretch and move them. He will point his toes and stretch his legs as well. He is starting to get more facial expressions, mainly his little lip quivers when he is sad, which is thankfully less often now. He is starting to yawn. Jes was so confused why we were so excited about a yawn! He looks at me and I love to gaze into his beautiful eyes. He is in there.
They plan to attempt extuabation again on Thursday, but this time in the OR with ENT so if it fails again they can use a scope to see why. He has a huge air leak around his vent- which is really good. The leak is so bad the vent does not even pick up his breathing because he is breathing on his own through his nose. Please please pray that the extubation will go well and his vocal chords will not collapse this time.
Jennifer Swenson Butikofer, Mike Anderson, Cindy Thompson and 79 others like this.
ReplyDeleteMarne Prettyman Eggleston We'll be praying. Every little victory, right? We love you.
Cherilyn Michelle Kynaston He is in there...what sweet words. We love you and pray for you. Thank you for telling us what to pray for specifically. He looks to be the same age as my baby and it makes me hold her tighter each day. Love you
Andrea Moore Roberts Love this update! I remember being so excited when Paige's air leak continued to worsen. Good bye vent! Continuing to keep Parker in my prayers.
Morgan Gainer That's great to hear!
Annette Swenson we are grateful for the small things
Kira Durham Thank you for the update...continual prayers to Parker.
Kelley Drury Birrell Yay! I love hearing this!
Jinky Andersen Definitely Pray pray
Emily Rees Pierce Thanks for all the updates. We are constantly praying for you! So happy about his victories!
Amy Ward Great news! He is a tough little guy!
Shelly Robbins Stoker Praying for you guys.
April Turnbow Allen Praying all day everyday...all of us. Love you lots!
Rebekah Towers Thanks for the updates. Still praying.
Jenny Forston Baker Happy for the update! Hugs! Still praying!
Melody Clayton Amazing little boy! I bet his valiant spirit shines through too! prayers continue
Jennifer Bradley Janda Is the speech therapist also working with him on developing a means communication for pain, needs, etc??? There are so many things they can work on right now while everything is fresh bc the plasticity in an infant's brain is really high (meaning new parts can learn to do what the damaged parts can't). So exciting that he is moving more:-) do you know which part (lobe) of his is brain were affected by the stroke?
Laurina Ward Walborn So excited for this progress.
Kimberly Knowlton Oldham Thank you for the update. I know it's long, but so glad there is some progress. :)
Robyn Thomas Swenson Excited to hear about his progress!!! We'll keep praying for you guys!
Abby Schulz Stephens So wonderful to hear good news. I think and pray for all of you often.
Tami Aldama Wow. I couldn't wrap my brain around how many complications there has been. Sending daily prayers. We love you and are so thankful for progress! Hang in there!
Gretchen Christensen So glad you are seeing wonderful signs of hope. Parker & your family are always in our prayers.
Molly Gudjenov So many prayers for little Parker! Very happy to hear about the improvements!!!
Stephanie Marston oh wow! We will pray so much that the extubation goes well tomorrow!!! We are thinking of you and and sweet little Parker!
Brandy Kole Konold Great great news Ashley, we will be praying everything goes well on Thursday.
Amelia Allison McCoy Ashley, thank you for sharing. Prayers will be answered!!
Joy Yang So happy to hear these moments!! We are still praying for you all. Thank you for such a beautiful example of love and faith.