I sure love this little guy. As you can see in the picture, he was extubated!!! I initially didn't post about it because I didn't want to get my hopes up (or anyone else's) and I didn't want everything dashed if it failed again. You know the phrase emotional roller coaster? For the most part we have been fairly even keel, but we have certainly had our moments.
The extubation went perfectly. The RT pulled the tube and he was immediately breathing well. A little crying, but oh it is so good to hear him cry. To hear his sweet little voice. By that night he was breathing room air.
Looking back,(I am posting this several weeks later), I see what a blessing it was to have him fail that second extubation. I had prayed so hard and did not understand one bit why he failed when everything pointed that he should pass. Now I realize it was to get us down here to Rady Children's Hospital in San Diego sooner. We probably would have stayed at UCLA for 2-3 more weeks if the extubation had stayed successful that day. Instead they rushed the transfer that weekend because of the trach possibility. The OT and PT at Rady's are AMAZING and they began working with him immediately while he was still intubated in the PICU. It made such a difference!
One OT in particular said "Don't look at the future, look at 2 weeks ago." I have lived by that. I ended up ordering a planner that I can track his progress daily and easily look back 2 weeks. What a difference 2 weeks makes! I am grateful now he failed that extubation because it brought on the transfer soooooo much quicker and got him in therapies that much sooner that have made all the difference. 2 weeks. God works in mysterious ways.
The extubation went perfectly. The RT pulled the tube and he was immediately breathing well. A little crying, but oh it is so good to hear him cry. To hear his sweet little voice. By that night he was breathing room air.
Looking back,(I am posting this several weeks later), I see what a blessing it was to have him fail that second extubation. I had prayed so hard and did not understand one bit why he failed when everything pointed that he should pass. Now I realize it was to get us down here to Rady Children's Hospital in San Diego sooner. We probably would have stayed at UCLA for 2-3 more weeks if the extubation had stayed successful that day. Instead they rushed the transfer that weekend because of the trach possibility. The OT and PT at Rady's are AMAZING and they began working with him immediately while he was still intubated in the PICU. It made such a difference!
One OT in particular said "Don't look at the future, look at 2 weeks ago." I have lived by that. I ended up ordering a planner that I can track his progress daily and easily look back 2 weeks. What a difference 2 weeks makes! I am grateful now he failed that extubation because it brought on the transfer soooooo much quicker and got him in therapies that much sooner that have made all the difference. 2 weeks. God works in mysterious ways.
Christy Michelle Dunn, Nicole McKinnon Swenson, Dennis Kasprzak and 120 otherslike this.
ReplyDeleteStacey Manning Having you close must keep him at such great ease. Nothing like having your loving mom right beside you.
Tina Winkel Mortensen love seeing you hug and hold him!
Lyric McKinlay Poulson Sweet boy. He's a staple in our regular prayers. He looks so good in your arms. Love ya friend!!
Jessica Dahlquist The sweetest
Rebekah Towers So sweet!
Kristen Mullaney Deptula I can't tell, is his tube out? It's amazing, even though this poor kid has really been through the wringer, he is still just so precious!!
Laurina Ward Walborn He looks extubated. How is his breathing? Such a cutie
Sandy Robinson Woods It's so wonderful to see you holding him!
Amie Traynor Timpson Give him a hug for us!!
Melody Clayton Sweet boy!
Robyn Thomas Swenson Cuddles, yeah! Look at that sweet boy!
Christina Marisol Horan Good job little man!!! Extubated?! Woo hoo!
Ashley Drury Swenson They wanted to try to extubate him one more time here. They did it this morning and so far, so good. I am not holding my breath, and I hope he doesn't either. They just took him off of the heliox and he is doing well so far.
Taty Bromley Sending love your way. Hope this time is a success .
Tiffany A. Winkel Nutter Beautiful Mama. Sweet boy.
Amy Ward Third time's a charm? Love and prayers to both of you.
Jenny Forston Baker What a sweet picture! So much love!
Jennifer Swenson Butikofer Love this!
Meg Gibson Singley
Jody Lynn Swenson Anderson Sweet
Cindy Thompson So wonderful. Such sweet spirits, both of you.
Jessica K Nielson Blattman I love it!
Kelley Drury Birrell I'm SOOOOO glad you're getting to hold him!
Heather Conover Sharp I was able to go to the temple last week. I put your names on the prayer role. I am praying for you. Love you
Jennifer Bradley Janda So glad you're getting to hold him:-)
Kristi Perkins How's his breathing doing?
Tina Winkel Mortensen I have friends asking how Parker is and wanted to have your permission to share this photo.