Wednesday, September 17, 2014
Today I am thankful that I have my camera here. It is amazing how handy it has come- to show off pictures of my little boy to the nurses, to video when he is active so that when neuro comes and he is sleeping I can show them a video instead of waking him up, and to look up pictures I found of him eating with a fork so OT could see which hand he prefers. And of course to take lots of pictures of my little boy with his stuffed animals. Extubation is scheduled for tomorrow and... I am trying to wait very patiently... That was actually one of my first thoughts when we began to understand the gravity of his situation is that this will be a great lesson in patience. I am so curious to see my little boy when he is off sedation and to see what abilities he might have and what we can begin to work on. The nurses keep telling me over and over how amazing the brain is and how much his young age is on his side. I am planning on having to start completely over and I am just so grateful he is here. I am excited, nervous, anxious and resolved to begin this journey together with him.
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Robyn Thomas Swenson, Jennifer Swenson Butikofer, Cindy Thompson, Cheri Lynn Denison and 90 others like this.
ReplyDeleteCassie Smith I made a sign for my kids and hung it in our school room it says YOU CAN DO HARD THINGS. You can do it and so can Parker. Thank you for sharing your experience with the rest of us. <3
Jessica Dahlquist Beautifully said.
Whitney Gomez What a beautiful and inspiring outlook on life! Love you Ashley! Love that sweet boy of yours too! Hoping and praying for a smooth extubation. xoxo!
Jon Birrell The kiddos and I are praying for a good day tomorrow for you all. Get that tube out :)
Amy Ward I was telling your mom about the book I just read about the pediatric neurosurgeon that first. separated conjoined twins successfully....everything I read gives me hope for a full recovery for Parker. Since he is so young, the undamaged portions of his brain can take on the functions of the damaged parts. Essentially, his cells are still in flux, deciding what they will do based on need. Such a blessing that he wasn't a year older....
Ashley Rihm Ashley Drury Swenson, your strength is amazing. Know that you continue to be in my and my family's prayers.
Ashley Drury Swenson Cassie I can't tell you how many times I have said that to myself before. "I can do this. I can do hard things." Usually when facing some type of chore or something I don't want to do. But it is such a good reminder. We can do this. We can do hard things.
Kristi Schneider You are an amazing Mom.
Liana Lindeman We are still praying for Parker and your family. We'll be praying extra hard tomorrow of a successful extubation. I can't wait to rejoice with you as you post each step of his progress and each little success. Blessings are ahead for you, I'm sure of it.
Jennifer Bradley Janda God works in mysterious ways...and he does answer prayer:-)